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What is my test score?!!! 2010-05-26 16:21:57.0
Test over.......lost my meal. It wasn't very good to begin with but awful and painful the second time. No score as of yet......another test tomorrow morning. They call it a stomach emptying test.......radio active food......CANNOT be good!!!! After the morning test, my doctors will discuss the results, and come up with another diagnosis as well as a strategy for treatment. They are nice at Nationwide Hospital too but I miss my friends at Primary Children's Hospital.

It will be good when my "friends" are my favorite, regular, best, school friends and not people at a hospital. I am thankful for my good friends that keep in touch and visit or call me. I am lucky!!!

My mom is with me for this trip, we will be sleeping at the hospital tonight. I will let you know how the tests turn out tomorrow.

Good night!
Ohio not Hawaii!!!!!!!!!!! 2010-05-25 16:21:05.0
Ohio here I come!!!!!!!! 2010-05-25 16:19:17.0
SO.. Today is the day we have ALL been waiting for! I fly out this morning and then get into Ohio around six! And then in the morning they are putting me in the hospital and they will start teast at 7:00 in the MORNING...... this place is CRAZY well thats all for now
XOXOXOXOXOXOXOOXOXGentrie
Weekend Update 2010-05-23 16:18:03.0
Hey guys its Gentrie and I only have 2 days left until OHIO! Can you believe that? Well it has been quite a crazy week if you ask me. My fourth G-J tube became displaced and so once again, off to the hospital to have it removed and yet another tube put in it's place. Each time the doctors say that they have not ever seen anything like it.........lucky me! It is very painful and frustrating because each time that my tube does this, it takes a day or two for everyone to believe me that I am in severe pain and that quite possibly.......though I know it is uncommon.........my tube has yet again failed.
 
I have been researching my health condition on the internet. The doctors here in Salt Lake do not understand very much about gastro paresis, they say it is very rare in kids and usually is quite short in duration. NOT mine.....I have been researching Dr. Carlo DiLorenzo in Ohio and he is world renowned for his work in this area. People travel from all over the world and yes, even from Draper, Utah to seek his expertise. He performs a procedure called a GI Pacemaker. It is apparently similar to the heart pacemaker but is placed on the side of my stomach. At Primary Children's Hospital, the doctors are unfamiliar with this procedure and it is still not FDA approved for use on children but we are hopeful to get a pacemaker anyway!
 
Two teenage girls have YouTube videos of their adventure with Gastro Paresis and their excitement of finally getting help with a GI Pacemaker. This gives me hope and makes me smile......which I don't do enough of lately. They have experiences that are like mine and so I have followed their stories and today, I contacted a girl named Megan by facebook.
 
She called my phone today and we had a great talk!!! I hope that I can help other people when I am better. Because we are both girls and teenagers, we were both often thought to possibly be anorexic or bulimic or just in need of attention.......NOT even close!!!!! I cry for food all of the time and when my friends and family are eating, I am always sad and VERY frustrated. It is so helpful to talk to someone who understands all of the pains and struggles that are associated with this little known condition. She also has had a great amount of pain in her stomach, which very few believe because they haven't experienced it and think that if your stomach doesn't work you shouldn't be feeling anything......not so!
 
My mom is going to talk with her mom today and see what they had to do to get the pacemaker. We will begin our journey to Ohio on Tuesday........just 2 days and we can get some of our questions answered!!!
 
I'll let you know how things are going........keep me in your prayers!!! XOXOX
 
All about me Gentrie Hansen 2010-05-18 16:17:04.0
Hey this is Gentrie and I just wanted to tell a little about myself! Well I am 14 and during Christmas break I got diagonsed with Pedatric Gastroparesis. What that is, is really just a paralysed stomache. I haven't eaten since Christmas, and I am still not able to eat. But on May 25 me and my mom are off to Columbus, Ohio to go to the Nationwide Childrens Hospital. I have been in and out of Primary Childrens and finally all the doctors told me that they don't know how to help me so they told us to go to the doctor in Columbus! I will keep you posted on all that happens there and even here!