I want to begin by saying thank you, thank you, thank you to each and every one of you who has emailed and posted saying that you are praying for Brea and our family. Life with three kids gets busy and there have been a few times when I though maybe it was time to shut down our website. Afterall, it started as an adoption journey site and I never intended to keep it up after we came home from China but it is times like these that I am so glad that I DID NOT shut it down! It has been so encouraging to sign in and read the many posts in the guestbook and the many private emails that have been sent to say that you are still praying! Thank you from the bottom of my heart. I know without a doubt that prayer brought Brea through her illness and it is what is going to sustain her throughout her life. God DOES indeed have a plan for this child and I am honored and humbled to be part of His plan.
Many of you suggested that the results of the biopsy could have been "off" because Brea had been sick in the weeks priot to the biopsy. Others suggested we have the biopsy slides sent to Arkansas Children's Hospital to be read and compared to past slides. THANK YOU...I was so everwhelmed by the results that I hadn't thought of either of those things. I emailed Brea's transplant cardiologist (that is his preferred method of communication) and asked him about both things and he hasn't yet gotten back to me. I also asked him about a relatively new test that is being used in some transplant centers called the "Heartsbreath". The test is similar to a breathalizer used to test for drunk drivers but instead of looking for alcohol it is looking for chemicals associated with rejection of the heart. IF this is available and could be used for Brea we could test her prior to her next biopsy and see if the rejection is increasing. The thought of having to go nine months without knowing anything is hard. I'll be sure to let you know when he gets back to me and what his answers are.
I thought you might enjoy a good laugh today so I thought I'd share with you some recent photos. Take my word for it...washable markers don't always come off easily and Brea has given new meaning to the words "Body Art"! Enjoy the photos!
Again, thank you for your prayers. I am in a much better frame of mind today than I was earlier in the week. I was so caught up in the results that I was letting it "steal my joy" (to borrow a quote from my dear friend Angela). I refuse to let that happen. My faith remains in God and I'm sticking to my motto...MY GOD IS BIGGER THAN SCIENCE (including biopsy results)!
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Take my word for it...washable markers DO NOT come off as easily as they go on! All this in just a matter of MINUTES!
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